Posts Tagged ‘premature baby’

Normal

For years, I thought I never wanted to be normal. To me, normal meant standard, average, what was expected. A bit boring, really. I liked being not normal. I liked being individual, a bit quirky. A taste in alternative music, films and books set me out from the crowd, as does my strange sense of humour. […] Read more…

Step in to a Patient's Shoes to Improve Communication

Effective communication with patients in any healthcare context is of the utmost importance. Sadly, providers so often don’t put enough thought into this aspect of care: during my journey I have experienced a litany of communication disasters that have added further distress and upset to the worst situation any parent could possibly imagine. The most serious of these communication disasters happened during […] Read more…

The Ways My Heart is Broken

My heart broke the moment I knew there was no more hope for Hugo. He had fought so hard for 35 days, had defied so many odds, won so many hearts. Hugo had been born early, far too early, and his lungs were not yet fully developed. There was nothing more that could be done, except show […] Read more…

Hugo’s Story

Hugo Christopher Dylan Parker was born at 11.19am on Thursday February 20, at St George’s Hospital, south London. He weighed just 420 grams. Hugo showed us that size isn’t necessarily equal to fighting spirit, or determination to live. I loved him from the moment I saw the line appear on the pregnancy test. Martin and I had been […] Read more…

One More Cuddle

  One More Cuddle I felt you, my darling boy Kicking and punching in my tummy I felt you, my precious boy Your skin against my skin I felt you, my precious boy I want to savour this moment forever Your fingers gently tracing my breast You woogle as I sing Hearing your lips gently […] Read more…

Advice for Neonatal Mummies

Having a baby in a neonatal unit can be a stressful time. I hope this guide is helpful for other mummies (and daddies). It contains advice I was given, things I learned the hard way, and my own reflections. Some of the information will be generic to any mother of any baby in any neonatal […] Read more…

One Week

One Week A week ago I awoke a mummy, your mummy Full of hope, joy and anticipation I dashed to the unit to see your face, To sing to you, to read to you, to soothe you The doctors said your brave fight was over There was nothing more they could do My heart broke […] Read more…

Hugo, who inspires so many

Hugo, my precious boy So wanted, so loved I thought my heart might burst with love Our love inspires so many Hugo, my special boy Bright in mind and spirit Never before has a name been so fitting Your character inspires so many Hugo, my champion boy Your strong arms and legs, your determination Never […] Read more…

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