Archive of ‘Health Communication’ category

Communication Matters: Results of the 2014 Neonatal Survey

Imagine seeing your new baby in an incubator, covered in tubes and perhaps ventilated to help them breathe. Imagine seeing your new baby in pain and there being little you can do to make it better. Imagine being surrounded by unfamiliar machines that beep relentlessly, unfamiliar words, terrifying news, feeling constant bewilderment. Imagine not being able […] Read more…

May is Preeclampsia Awareness Month: Why It Matters to You

In February 2014, I was 23 weeks’ pregnant with my first baby. I had been feeling a bit unwell for a few days: indigestion, breathing was difficult, and I had suddenly weight. All normal pregnancy gripes I thought, but I checked Dr Google just in case, as you do. Dr Google suggested preeclampsia. “Don’t be so […] Read more…

Language Matters: Health Communication and Baby Loss

Being in a healthcare environment – whether that be a GP’s surgery or a hospital – can be a hugely disempowering experience. You are likely to feel especially disempowered when you receive bad news – your head spinning, struggling to take in usually complex information. Then, more than ever healthcare professionals of all disciplines need to […] Read more…

Birth, Twitter, and Perception

Since Hugo died, I have been using Twitter to promote Hugo’s Legacy. I have been fortunate to engage and make friends with a range of people who share my passion for making a difference to other women’s maternity experience. Twitter has on many occasions been set alight with women talking openly about their own experiences, and healthcare professionals […] Read more…

Can You Help #HugosLegacy Trend on Friday?

Friday February 20 is Hugo’s first birthday. He is not with us, so it will be a bittersweet day. Could you help us, by celebrating our little boy’s arrival in the world? We are hoping to celebrate our little boy’s birthday in his absence. Hugo was a very special boy, who touched the lives and hearts of […] Read more…

Words of Advice from Baby Loss Moms

The wonderful Meghan is Mabel’s Mummy. Today is Mabel’s first birthday – Happy Birthday, Mabel – and it is sadly also the day she died. Meghan blogs at Expecting the Unexpected. She is a midwife, and as part of a talk to local midwifery students prepared a handout about baby loss. Meghan had asked her […] Read more…

Hugo's Legacy and #MatExp

A significant part of Hugo’s legacy includes improving experiences of maternity services for women who have a traumatic birth, and/or whose baby is cared for in a neonatal unit. My particular focus is on making sure language, communication and information is clear and effective at this time, which can be bewildering and upsetting for mums […] Read more…

Time to Talk: PTSD the hidden cost of NICU

As this post from The Smallest Things describes, NICU parents’ needs are often not met after their baby’s stay. Your baby constantly tipping between life and death, the constant emotional torture, beeps of the machines can all leave an enduring toll. The ‘usual’ postnatal systems and processes don’t meet these parents’ needs – and this […] Read more…

Everyone Should Know About Pre-Eclampsia and HELLP Syndrome

Pre-eclampsia and HELLP syndrome are life-threatening conditions that can happen in pregnancy. Thankfully they are rare, but they can and do kill women and babies. These illnesses nearly killed me, and they took the life of my much-loved baby son. I say this not to scare people, pregnant women especially. Pregnant women have enough to stress about. The […] Read more…

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