Archive of ‘Health Communication’ category

What Is ‘Normal’, Anyway?

What is normal? It’s a question I’ve thought a lot about. Last year I wrote about how growing up I sought to be different, thinking ‘normal’ was boring because it means conforming. After Hugo’s death, however, I would give anything to be a ‘normal’ mum – using the term ‘normal’ loosely, to mean having a […] Read more…

What Happened at the National Maternity Review Team Listening Event?

Yesterday was the first listening event of the National Maternity Review, held at London King’s College. The invitation, from the Chair of the review herself, Baroness Julia Cumberledge promised that the event would “…be pooling ideas to improve maternity services.” And that “We are most anxious to hear from all those who have an interest […] Read more…

Snapshot of the Maternity Experience Campaign – In Numbers and Graphics

For what began as a ‘small pilot’, the Maternity Experience campaign (#MatExp) has been going really well…! I originally published on the MatExp website; I am so proud of everything the campaign and the passionate community behind it has achieved I wanted to feature it on my own blog, too to further spread the word. Here are some […] Read more…

HSJ Patient Leaders – Changing the Way Health Services Perceive Patient Experience

Yesterday I travelled to Birmingham for the announcement of the very first list of Patient Leaders by the Health Service Journal (HSJ) – I am honoured to be included in it for my work with Hugo’s Legacy and #MatExp. It’s a secret I’ve had to keep for about a month, because the list was under embargo until last […] Read more…

My Half-Year Evaluation: Have I Thrived?

Half-year Evaluation for Leigh Kendall Background At the end of 2014, Leigh reflected on the events of that year. She acknowledged that she had survived the worst thing imaginable – the death of her much-wanted, much-loved son, Hugo. You recognised that 2014 had shown you that the unexpected can happen, your dreams can be ripped to shreds. […] Read more…

Views, Experiences, Bias – and a Paradox

It’s been a rollercoaster few days: constructive discussion overshadowed by insensitivity and bias; and the discovery in a #MatExp discussion of misconceptions and a paradox that needs to be addressed. Anyone who knows even the smallest amount about me knows that I am passionate about Hugo’s Legacy, which in a nutshell includes improving communication for neonatal parents, women who […] Read more…

Sunday Thought June 7, 2015: Boxes, Labels, and Survivor’s Guilt

Grieving means I often feel emotional. I feel especially emotional this morning after watching this film of Alison Cameron’s Plenary speech: From Patient Voice to Patient Leadership at last week’s NHS Confederation conference. The word ‘inspirational’ is often banded around so much it can lose its true meaning, but Alison is to me the very definition […] Read more…

My #MatExp Action – Bereavement Support for Parents

STOP PRESS! If you are on Twitter, please join #PNDHour on Wednesday June 3 between 8pm and 9pm. I will be co-hosting a chat about baby loss support. All welcome. Hugo’s Legacy focuses on improving information and communication, especially for parents who have lost a baby. #MatExp is a powerful grassroots campaign that aims to identify and share […] Read more…

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