Please dig deep for neonatal charities

Today is Neonatal Intensive Care Unit (NICU) Giving Day, which is a great opportunity to remind everyone why helping neonatal charities is so important – and the impact their work has on poorly babies and their families.

Neonatal units in hospitals up and down the country – and indeed the world – help give sick and premature babies the best possible chance to survive and thrive.

Many neonatal units in hospitals in the UK have their own charity dedicated to raising funds.

In the US, NICU care costs an average of $3000 a day (I gulped when I saw that figure too), which reinforced just how lucky we are to have the NHS. I cannot imagine the extra pressure of worrying of how we were going to pay for my son’s care (with or without medical insurance) at the same time as helping him fight for his life.

However, providing treatment free at the point of care in the UK means that NHS funds can only provide so much. Neonatal charities and their supporters often fundraise to help bridge the funding gap for new equipment, as well as things to make the experience a bit easier for their parents.

I am proud to be an ambassador for First Touch, the charity for sick and premature babies at St George’s Hospital, where my son Hugo was cared for. Funds raised by and on behalf of First Touch helps buy state-of-the-art equipment that is outside the scope of NHS resources, resulting in improved management of and quality of care for poorly and premature babies. This helps so many parents be able to take their precious babies home.

First Touch also helps look after the families, by part-funding a Family-Centred Care Coordinator, and helping make the parents’ room comfortable. Parenting in a neonatal unit is exhausting and indescribably stressful, meaning little touches like free tea and coffee in the parents’ room are greatly appreciated. The magazines were a thoughtful touch too, even if all I was capable of doing at the time was looking at the pictures – but even that was appreciated to give my mind a rest for five valuable minutes.

Sadly, my son Hugo did not make it home. Despite everything being done to help Hugo he was just too small, and premature (he was born at 24 weeks).

The charity assists bereaved parents, too, by supporting the annual remembrance service, bereavement training and literature.

If you are looking for a charity to run, walk, bake cakes or throw yourself out a plane for, a neonatal charity is a very worthwhile cause to raise money for. Not only will you be helping sick and premature babies, you will be helping their parents through the most challenging time.

Being biased, I think every penny raised should be donated towards First Touch. They, and the neonatal unit will forever have a special place in my heart because of my Hugo.

People are likely to want to support charities that are close to where they live too, so do give your local hospital a call or have a look on their website to see how you can help their tiniest patients.

Please also do consider Bliss, a national charity that provides vital support such as information about caring for a sick and premature baby; a helpline; and family centred care support.

Thank you – these tiny babies and their parents are forever grateful for your generous support.


0 comment on Please dig deep for neonatal charities

  1. Louisa
    October 2, 2014 at 11:46 am (5 years ago)

    Thank you so much for sharing your story and highlighting the funds that need to be raised to help parents during what must be the mist frightening time of their lives. #sharewithme

    • Leigh Kendall
      October 2, 2014 at 12:17 pm (5 years ago)

      Thank you for taking the time to read it – I hope you’ll consider supporting neonatal charities xxx

  2. Susanne Remic (@Ghostwritermumm)
    October 2, 2014 at 9:59 am (5 years ago)

    The work you do to raise awareness and to keep Hugo’s legacy alive is so inspiring. Thank you for sharing his story, and thank you for all that you do x x x

    • Leigh Kendall
      October 2, 2014 at 10:38 am (5 years ago)

      Thank you so much. Helping other people helps keep Hugo’s name alive. Thank you for all your support as always, lovely xxx

  3. Jenny
    October 1, 2014 at 9:49 pm (5 years ago)

    What a great charity is sound like too. I will be sure to share hun. You are doing such great work spreading the word and helping others out. Great post. Thanks for linking up to Share With Me. I hope to see you again soon. #sharewithme

    • Leigh Kendall
      October 2, 2014 at 8:51 am (5 years ago)

      Thank you for sharing it, these charities need all the money and support they can get xxx

  4. joyandpops
    October 1, 2014 at 10:52 am (5 years ago)

    Great post and such a worthwhile discussion to highlight these charities. It is times like these that we thank goodness for our NHS, despite it’s many flaws. I have no experience of the NICU, as sadly our son was Stillborn. We did however find the SANDS charity to be very helpful. Lots of people out there doing great work for families. x

    • Leigh Kendall
      October 1, 2014 at 1:23 pm (5 years ago)

      I’m so sorry for your loss. There are so many charities doing sterling work to support people with all sorts of things, and we should do all we can to support them in turn. Thanks for your comment xxx

  5. liquoriceuk
    October 1, 2014 at 8:11 am (5 years ago)

    Fab post Leigh – these charities are all fab and worthy of supporting. Raising awareness is so important – as you say NHS resources will only stretch so far and these charities do so much to help poorly babies and their families.

    • Leigh Kendall
      October 1, 2014 at 10:33 am (5 years ago)

      Thank you! These charities do amazing work to support poorly babies and their families – I hope I can encourage more folk to help raise money for them. Thanks for your comment xxxx

  6. meghanoc
    September 27, 2014 at 9:07 pm (5 years ago)

    Mabel spent 6hrs in the NICU here in the US and our bill was $14,000. Fortunately our insurance kicked in once we met our deductible- $7000 for the family plan. For those 6 hours Mabel and I were considered a family. Now I am strictly an individual in their eyes. Sigh. Neonatal intensive care is expensive. I hope today raises many funds.

    • Leigh Kendall
      September 28, 2014 at 11:11 am (5 years ago)

      Oh my goodness. It makes you realise just how lucky we are in the UK. It’s just mind-boggling. I hope the day raises many funds for these tiny babies and their parents too xxx

  7. SingleMotherAhoy
    September 27, 2014 at 3:00 pm (5 years ago)

    It really does make me cross that hospitals should have to have their own charities in order to buy equipment; the NHS should receive adequate funding from taxes. My local hospital has the Stars Appeal, and has recently opened a brand new NICU ward with all sorts of wonderments, including rooms for parents to stay on the ward. It’s a really fantastic facility and the charity is something the whole community supports.
    Thanks for linking up with #WeekendBlogHop!

    • Leigh Kendall
      September 27, 2014 at 4:09 pm (5 years ago)

      The trouble is, NHS resources can only stretch so far and there is only so much to go around. There are incredible advances in medical technology, but the budget often can’t keep up with the expense – so it’s great charities can step in to help. What your local hospital’s appeal has done is fantastic, especially with the rooms for parents to stay. It’s crucial for parents to be able to be close by – that sort of thing usually does have to come from charitable funds, because the NHS money is there to treat and care for the babies themselves. Thanks for commenting xxx


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